When I was first diagnosed post-surgery in 2008, the first
thing my surgeon suggested was going on a low oxalate diet. This is also frequently recommended to
patients who have a history of kidney stones.
Finding a reliable source that had definitive information
about the amount of oxalate in foods proved to be more difficult that I
expected. Thankfully, I found "TheLow Oxalate Cookbook, Book Two" by the VP Foundation. This book contains reliable information on
oxalate from years of scientific testing.
Please note that this is not an
IC-friendly cookbook – just a low oxalate cookbook and I am not
recommending trying any of the recipes contained in this book because of that.
Oxalate is found in foods from plant sources and has been
known to contribute to a number of genital, urinary, skin, rectal, muscle,
bowel, and general body pain and irritation.
Specifically for those with IC, it can exacerbate urinary urgency,
frequency, inner-bladder and urethral burning and pain, and vulvodynia. From what I have found speaking to others
with IC over the years (and from personal experience), a low oxalate diet is
most effective at improving/curing vulvodynia.
The Low Oxalate Cookbook, Book Two, recommends that one
should try to limit consumption of oxalate from foods and beverages to ~40-60
mg/day. Participants in the pain study
they conducted reported that over time, they were able to gradually increase
the amount of oxalate in their diet without pain. I have found this to be true. I stayed on a strictly low oxalate diet for
approximately 1.5 years and then gradually increased the amount of oxalate in
my daily diet over about a year. *
*During this time I
was taking Elmiron 100 mg three times a day and also doing frequent Uracyst and
lidocaine 1% bladder instillations, which both improve IC.
Although there are many similarities in an IC-friendly diet,
so much varies from person to person, so I will provide a selective list of low,
medium and high oxalate foods based on what I can eat (which will be highlighted)
and some foods that other ICers I have talked to or read about have found
okay. Before going on a low oxalate
diet, however, I implore you to do the Elimination Diet first. It might be smart to test only the low oxalate
foods at first. I have done theElimination Diet about 4 times and have re-tested foods over the years – in
some cases, I have been able to add foods into my diet that I found I couldn't
eat when I tested them previously (obviously the medication I'm taking and the
treatment I'm doing is helping).
When looking over the list – especially the highlighted
foods that I can eat – please keep in mind that I take Prelief with everything
I eat (the amount I take depends on the food) and I also take Lactaid Ultra when
I have anything containing lactose.
Everything
highlighted with a * beside it means that I can only eat it if it's organic. I'd say about 95% of my food has to be
organic or it will cause inner bladder pain and I highly recommend switching to
organic if you can. It makes a huge
difference – trust me, you will feel it.
|
Low Oxalate
|
Medium Oxalate
|
High Oxalate
|
Beverages
(1 cup)
|
Chamomile
tea*
Peppermint
tea*
|
|
|
Fats & Oils
(1 tablespoon)
|
Canola
oil*
Vegetable oil
Olive oil
|
|
|
Fruits
|
Avocado*
Lychee
Honeydew
melon*
Pears*
Yellow plums
Mango
(I can have either frozen or dried organic – never fresh)
Watermelon
Grapes (red and seedless green)
Peaches
Strawberries (fresh)
|
Banana
Dates*
Prunes
|
Blueberries*
Figs
|
Grains and Grain
Products
|
Barley*
(cooked)
Cornflakes*
(try Nature's Path's Honey'd Corn Flakes)
Matzo*
Cornstarch
(1 tbsp)
Corn tortilla
Malt powder
Oat
bran (1 tbsp)
Pasta*
(one ingredient: organic durum wheat semolina)
Long grain rice
White rice
Wild rice
Rye bread
|
Plain bagel
English muffin
White
flour tortilla*
Whole wheat bread (1 slice)
Oatmeal
(rolled oats)
Tortilla chips
Corn grits
Brown rice flour (1/4 cup)
Unbleached
white flour * (1/4 cup)
Couscous*
Brown
rice*
Wheat
germ* (1 tbsp)
|
Blueberry bagel
Whole wheat tortilla
Bran flakes
Millet
Popcorn*
(4 cups)
Pretzels
Barley flour (1/4 cup)
Rye flour (1/4 cup)
Whole wheat flour
Orzo*
Wheat
germ* (1/3 cup)
|
Herbs, Spices and
Condiments
|
Almond extract (1 tbsp)
Fresh basil (1 tbsp)
Fresh chives (1 tbsp)
Dill*
(1 tsp – fresh)
Mustard
(1 tbsp)
Peppermint leaves
Rosemary leaves (1 tsp)
Dried ground sage (1 tsp)
Dried thyme (1 tsp)
Vanilla
extract (1 tbsp)
|
Dill*
(1 tablespoon – fresh)
Ground oregano (1 teaspoon)
Rosemary leaves (1 tablespoon)
Dried ground sage (1 tablespoon)
Dried thyme (1 tablespoon)
Mayonnaise
|
Anise (1 teaspoon)
Ground oregano (1 tablespoon)
Parsley flakes (1 tablespoon)
Tahini (1 teaspoon)
|
Legumes, Nuts &
Seeds
|
Coconut (fresh)
Black-eyed peas
Yellow split peas Green peas*
Mustard (1 tbsp)
|
Red kidney beans
Lima beans
Lentils
Green
split peas*
|
Black beans
Pinto beans
Almonds
Cashews
Peanuts
Peanut butter
Sesame seeds (1 tsp)
|
Meats & Fish
|
Ground beef
Roasted
chicken* (meat only)
Eggs
Liver
Turkey
|
|
|
Milk & Milk
Products
|
Butter
Cream
cheese* (1 oz - organic)
Skim
milk (lactose-free)
Low-fat milk
Whole milk
Goat's milk
|
|
Vanilla rice milk (1 cup)
Carob rice milk (1 cup)
|
Other Foods
|
Baking
powder*
Baking
soda
Cream of tartar
Gelatin (unflavoured)
Salt
Corn
syrup
Clover honey
Maple syrup
Brown
sugar (1 tbsp)
White sugar (1 tbsp)
|
Yeast
|
Carob chips
Carob
powder*
Stevia powder
|
Vegetables
|
Asparagus*
Green beans
Bok choy
Broccoli (boiled)
Cucumbers*
Iceberg
lettuce*
Romaine
lettuce*
Mushrooms*
Red
pepper*
Alfalfa
sprouts*
Acorn squash
Zucchini
|
Artichoke (1 medium)
Broccoli (raw or steamed)
Eggplant
Green pepper
|
Canned olives
Beets
Celery*
Green beans
Potatoes*
(I can only eat organic red potatoes)
Potato
chips*
Spinach
Sweet
potato*
|
I hope this information will help you if you have decided to
try going on a low oxalate diet, especially if you suffer from vulvodynia. Please remember once again that this is not
an "IC-friendly diet list" and that the exhaustive list can be found
in the book.
If you do decide to try to go on a low oxalate diet to
improve some of your symptoms, please let us know how it goes! Good luck! J
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ReplyDeleteHello, I was wondering where you got the Uracyst and lidocaine 1% bladder instillation treatments. I'm asking on behalf of my mom, who's been suffering in pain with Internal Cystitis. I've been researching on the internet and Uracyst sounds like it might help her. Just this week she went to her Urologist with the info and he said he's never heard of it. She lives in Ontario. How can she go about getting the treatment with Uracyst or could you tell me where you went to get the instillation treatments?
ReplyDeleteHi Tario,
DeleteI'm really surprised that her urologist hasn't heard of it. It's been around for at least 5 years. Though some urologists favour DMSO because it's free and Uracyst isn't. You can get Uracyst 20 mg through a prescription - it comes in boxes of 4 bottles but you can request one bottle at a time. The lidocaine 1% comes separately. Xylocaine 1% is legally non-prescription in Canada but not everyone is aware of that (including pharmacists) and it generally needs to be ordered through a pharmacy. However, I have also gotten smaller quantities through prescription (though it isn't necessary). If her urologist has his office in a hospital, he could likely give you a bottle of it to try. When I first started getting them, my gynaecologist who was also trained in urology is the one who did the instillations for me. I'm fairly certain your mom's urologist could administer them for her. You start off with one instillation per week for 6 weeks and then spread them out after that. I have heard that some hospitals have nurses that do bladder instillations but I have never encountered one. After a couple of years of having the instillations, to become more independent with my treatment, my surgeon trained me to do them myself and now that's what I always do and I do them approximately once a month. For this I need a catheter tray, a special extremely large syringe, a special tiny catheter and a bottle of each medication. Do not start off this way - trust me. You need to know what you're doing or you could give yourself an infection. I hope this information helps and if you or your mom has any further questions, please let me know! Thank you! :)