Food and Drinks:
- Lemon juice
- Carrots
- Anything soy (Tofu, miso, soy oil, soy milk, soy flour, soy lecithin, etc.)
- Pepper
- Too much table salt (Table salt is very acidic; use sea salt instead)
- Mayo
- All dressings (Salad dressings, marinade, condiments, dips, anything)
- Tomatoes and all tomato products
- Citric acid (This is found in all citrus fruits such as oranges, grapefruits, etc., and is found in juices, candy, fruit-flavoured gums, jams, canned foods, some teas, cereals, and is found as an additive in most foods)
- Coffee
- Yoghurt
- Sour cream
- Broccoli
- Cabbage
- All nuts (Yes, even almonds)
- Grapes
- Apples
- Cantaloupe
- All alcohol
- All berries except organic blueberries
- Non-organic honeydew melon
- Non-organic peppers
- Non-organic cucumbers
- Non-organic blueberries
- Non-organic red potatoes
- Non-organic celery
- Non-organic lettuce
- Non-organic alfalfa sprouts
- Non-organic pears
- Non-organic peas
- Non-organic cereals
- All preservatives (Except calcium propionate --- I can tolerate a small amount of this one with Prelief, only if it is the last ingredient listed, such as in some fresh pita breads)
- All additives
- Artificial sweeteners
- Artificial flavours
- All fruit except organic blueberries, organic honeydew melon, organic pears, and dried or frozen organic mango (All with Prelief, of course)
- All fish except tuna
- Balsamic vinegar
- Any acid natural additives - citric acid, nitric acid, etc.
- All herbs (especially rosemary!) except fresh organic dill
- Unfiltered water
- Regular milk (Try lactose-free)
- Aged cheeses
- Cottage cheese --- Yes this is a young cheese, but don't be fooled! It has citric acid in it!!!
- All teas
- Maple syrup
- Meat
- Garlic
- Onions
- Egg yolks --- But I can eat egg whites
- Chocolate (Even organic white chocolate)
- Cream --- Ice cream etc., but don't despair! I can eat vanilla frozen yoghurt if it doesn't have any troublesome ingredients or additives or preservatives
- Quinoa (This one makes absolutely no sense to me but it flares me instantly)
- Beets
- Wild blueberries
- Anything carbonated
- Pop/soda
- All caffeine (Even from green tea)
- Anything smoked (Even smoked tuna)
- All processed foods
- All pre-packaged foods
- Most cereals
- Most food colouring, especially the different variations of red
- All jam
- Regular sugar --- Try demerara sugar instead (cane sugar)
- All candy
Other:
- Cold medicine (Advil Cold & Sinus, etc.)
- Pantyhose --- Try thigh-high stay-ups
- Pants that hit you in the wrong place --- Guess jeans hit me in the right place, thank goodness
- Running
- Bending over --- Try squatting
- Any exercise using your abdominals/pelvic muscles
- Sitting in a chair without my seat cushion (Even still, most chairs are not okay with me and lead me to faint from pain)
- Taking the bus/train
- Lifting/carrying heavy objects
- Carrying a backpack
- Pilates
- Most supplements, especially multivitamins and/or potassium, ouch!
- Tight underwear/tight pants
- Spandex
- Sleeping without a pillow between the knees
- Sitting on a bike (Exercise bike, motorcycle, regular bike, etc.)
- Sitting forward
- Any activity that includes moving your arms a lot, especially at your side such as tennis, badminton, etc.
- Ballet
- Pushing when you urinate --- even if you have to sit there for five minutes before you can start, DON'T PUSH!
- Not drinking enough water --- I drink 8-20 litres a day
- Holding urine --- this is one of the worst things you could do if you have IC --- even if you're in a bad situation such as on the highway, figure it out. Either pull off and find a bathroom or buy some portable, disposable, female urinals to take with you when you know there's not going to be a bathroom closeby.
- Sucking in --- You will pay for doing this with a huge swollen belly that can't be sucked in. Wear clothes that make you feel confident enough that you don't feel the need to suck in because I'm telling you, the swelling can make you look about 8 months pregnant and sorry, you can't suck in that type of swelling.
- Swimming in a pool --- It is not the act itself, but rather the chlorine in the pool, even in salt water pools because they still have to use some chlorine. If you live near a lake or the ocean, take advantage of it because swimming is one of the only forms of exercise we can tolerate.
Oh my god- your list of triggers and diagnoses makes me so sad for you. Please please try the Chinese herbs I take for IC- they have helped tremendously. They are called zhu ling tang and you take 6 capsules, 3 times a day- preferably on an empty stomach. They really really help a lot. I get mine from my acupuncturist, but you can order them online. Cystoprotek also seems to be helping somewhat (maybe). I hope you are seeing a good naturopath or someone who can get to the root of your issues- they are no doubt connected to some underlying issues. Good luck.
ReplyDeleteHey there. Wow you sound like you suffer from pretty severe IC. Mine was horrible like that several years ago. I then developed other autoimmune problems and was so sick i couldn't walk for a whole year. I am now much better because I found an amazing doctor at johns Hopkins who found the root of what was causing my diseases. It happened to be yeast overgrowth in my intestines from years of taking antibiotics for acne when I was a teen. I'm now 25 and still have IC, but it is now considered mild. I completely changed my diet and learned a lot about using food as medicine. I recently had a horrible flare that nearly sent me to the ER. But I realized I was eating too much corn and gluten again (which I am sensitive too) and it flared up my GI tract, hence flaring my bladder badly. I cut out gluten and corn and now four days later feel much better still with a few residual pains. But I know in another week I'll be much better. Don't feel the need to take my advice or anything, I'll understand because you don't know me. But please read this book: The Inside Tract by Dr. Gerard Mullin MD. He is my doctor. A brilliant man indeed. I suspect you should either go on Track 2 or Track 3. Anyway, this might be the answer to you IC and making it better. I know that one day mine will go into remission, if I keep eating this way. I do fall off the wagon here and there and my health problems creep back up on me. But I stop it in its tracks when I feel I'm getting worse. Anyway I wish you well. If you'd like to contact me my email is jsenica89@gmail.com. my name is Jamie and I'm here to help and listen. Take care hun.
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